A note from IOCDF Executive Director, Rebecca Deusser:
It is my sincere pleasure to welcome you to the International OCD Foundation (IOCDF) community. Our 40-year-old organization is dedicated to supporting all those affected by OCD and related disorders, such as BFRBs, along with their support systems, the professionals who treat them, and the researchers advancing our understanding of these conditions. We are honored to continue the important work that began through the TLC Foundation for BFRBs and to expand opportunities for connection, education, and collaboration for the BFRB community.
No matter your connection to the community or where you are on your journey, we are here to provide help, healing, and hope. If you would ever like to connect, share ideas, ask questions, or learn more about our programs, please reach out. Your generosity, engagement, and support make this work possible. Thank you for being part of this growing and compassionate community!
Body-focused repetitive behaviors (BFRBs) are any behaviors that are focused on one’s own body that involve biting, pulling, picking, or scraping one’s own hair, skin, lips, cheeks, or nails that unintentionally lead to physical damage to the body and have been met with multiple attempts to stop the behavior (3).
What you'll learn from this webpage:
- What are BFRBs? Learn what body-focused repetitive behaviors are and how they impact daily life.
- Trichotillomania & Excoriation Disorders: Understand hair-pulling and skin-picking behaviors, their causes, and effects.
- BFRBs & OCD: See how these conditions overlap and share genetic links.
- Other BFRBs: Explore related behaviors like nail-, cheek-, and skin-biting.
- Treatment Options: Discover effective therapies and medications that support recovery.
- Support & Awareness: Find ways to help loved ones and raise awareness through IOCDF resources.
BFRBs can be:
- Intentional, for example done purposely for a purpose (e.g., looking in the mirror and picking acne to smooth skin or pulling hairs that don’t “feel right”), or
- Emotionally driven, for example in response to stress, anxiety, negative thoughts or emotions, or in an attempt to get rid of unpleasant urges or memories.
- It is also common for pullers or pickers to pick or pull out of awareness, for example while studying, reading, talking on the phone, sitting at a desk, or on a computer).
- Most individuals with BFRBs will engage in each of these pulling styles at one time or another
The two most common types of body-focused repetitive behaviors are trichotillomania (hair-pulling disorder) and excoriation (skin-picking disorder).
BFRBs and OCD By the Numbers
How are BFRBs related to OCD?
- People with BFRBs are more likely to have OCD. 22-29% of individuals with trichotillomania and 10-15% of individuals with excoriation disorder also have OCD, highlighting that BFRBs and OCD often occur together.
- Individuals with OCD are also at greater risk for BFRBs as 10-30% of individuals with OCD also have a BFRB.
Why do BFRBs and OCD occur together?
- Genetics play a role: Research suggests that OCD and BFRBs share genetic risk factors, meaning if someone in your family has one of these conditions, you might be more likely to develop it as well.
- Around 17-18% of people with BFRBs have a family member with OCD. This number is higher than in the general population showing that OCD and BFRBs can run in families.
BFRB clinical community is a subset of the OCD clinical community
- Many people with BFRBs seek treatment from specialists who focus on OCD and related disorders
- There is a growing demand for clinicians to receive more training in treating BFRBs to ensure people who struggle with these disorders get the help they need.
Other BFRBs
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Treatment Options
Psychotherapy and medication (in some cases) are the treatment of choice for BFRBs. Different types of psychotherapy have been shown to help individuals reduce or stop their repetitive behavior entirely.
Habit Reversal Training (HRT) is a three component training program that helps you reduce or stop repetitive behavior. (7)
Three Components of HRT:
- Increased Awareness: working with a trained mental health therapist to recognize situations or circumstances in which you are likely to engage in the repetitive behavior. This may include becoming aware of sensations or movements you feel and do before the behavior and/or recognizing your emotional state before the behavior occurs.
- Competing Response: identifying a behavior that can be substituted for the repetitive behavior. The new behavior should make it hard or impossible to do the unwanted behavior. For example, if you are trying to avoid picking your skin, you might clench your fist into a tight ball or sit on your hands. The goal is to perform your new substituted behavior every time you feel the urge to do the repetitive behavior or are in a situation where it is likely to occur.
- Social Support: bringing in support systems such as parents, siblings and friends to assist you with reducing/eliminating the behavior. Your support system is brought in to praise you when they see you performing the substituted behavior and also to remind you about the substituted behavior when they see you engaging in the unwanted behavior.
The research on HRT is promising for short term improvement, however, professionals and those with lived experience have found when used alone, long-term improvement is difficult.
Impact on Families
Families with a loved one with a BFRB play a huge role in their care and journey through treatment.
Families can aid in recovery by:
- Learning about their BFRB and treatment options
- Communicating with empathy
- Encouraging professional help and participating in treatment when invited
- Practicing patience: understanding that slip ups are common in long-term recovery
While it can feel overwhelming to care for someone with a BFRB, it’s important to take time to care for yourself. This may look like:
- Seeking out family support groups
- Speaking with a mental health clinician
- Engaging in self-care activities
In Summary
BFRBs, such as skin-picking (3.5%) and hair-pulling (1.7%), affect a significant portion of the U.S. population, with an additional 15-25% experiencing subclinical symptoms. These disorders are not only common but also highly distressing, often leading to functional impairment and a reduced quality of life.
Despite their prevalence and the considerable public health burden they pose, BFRBs remain under-recognized, underfunded, and under-researched. While treatment exists, a larger treatment gap persists, worse than that seen in OCD, leaving many individuals without adequate care or support. This disparity highlights a need for increased awareness, research funding and access to evidence-based interventions.
For more information on BFRBs, reference the Expert Consensus Treatment Guidelines for BFRBs (PDF).
Additional BRFB Resources
IOCDF Resource Directory
Partner Organizations |
Video Links |
Get Involved
Interested in raising awareness and understanding of BFRBs within both the professional and lived experience communities of the IOCDF? Join the IOCDF’s BFRB Special Interest Group.
Stay Updated on Resources and Programming on BFRBs
Sign up to be alerted about resources and programming specific to body-focused repetitive disorders (BFRBs), such as upcoming livestreams, conferences, etc.
References
(1) American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596
(2) Farhat, L.C., Reid, M., Bloch, M.H., & Olfson, E. (2023). Prevalence and gender distribution of excoriation (skin-picking) disorder: A systematic review and meta-analysis. J Psychiatr Res, 161, 412–418.
(3) Houghton, D.C., Alexander, J.R., Bauer, C.C., & Woods, D.W. (2018). Body-focused repetitive behaviors: More prevalent than once thought? Psychiatry Research, 270, 389–393. https://doi.org/10.1016/j.psychres.2018.10.002
(4) Phillips, K.A., & Stein, D.J. (2023, June). Trichotillomania (Hair-Pulling Disorder). In Merck Manual Professional Version. Merck & Co., Inc.
(5) Phillips, K.A., & Stein, D.J. (2023, June). Excoriation (Skin-Picking) Disorder. In Merck Manual Professional Version. Merck & Co., Inc. Retrieved from Merck Manual
(6) Sani, G., Gualtieri, I., Paolini, M., Bonanni, L., Spinazzola, E., Maggiora, M., Pinzone, V., Brugnoli, R., Angeletti, G., Girardi, P., Rapinesi, C., & Kotzalidis, G.D. (2019). Drug Treatment of Trichotillomania (Hair-Pulling Disorder), Excoriation (Skin-picking) Disorder, and Nail-biting (Onychophagia). Current Neuropharmacology, 17(8), 775–786. https://doi.org/10.2174/1570159X17666190320164223
(7) Skurya, J., Jafferany, M., & Everett, G.J. (2020). Habit reversal therapy in the management of body-focused repetitive behavior disorders. Dermatologic Therapy, 33:e13811. https://doi.org/10.1111/dth.13811
(8) Thompson, H.A., Farhat, L.C., Olfson, E., Levine, J.L.S., & Bloch, M.H. (2022). Prevalence and gender distribution of trichotillomania: A systematic review and meta-analysis. Journal of Psychiatric Research, 153, 73–81. https://doi.org/10.1016/j.jpsychires.2022.06.058
(9) Grant, J.E., Dougherty, D.D., & Chamberlain, S.R. (2020, June). Prevalence, gender correlates, and co-morbidity of trichotillomania. Psychiatry Research, 288:112948. https://doi.org/10.1016/j.psychres.2020.112948
